Health management in children with osteogenesis imperfecta

• 作者: Hai-Jun Li Qian Du Shuxian Xu Xi-Zhe He Xiao-Yan Fan Yi-Bo Wu
• 来源期刊: 衰老研究
• 学科: 医学
• 关键词: Osteogenesis imperfecta CHILDREN Health management
• 年，卷（期）: 2020,（2）
• 页码范围: 52-58
• 页数: 7页
• 分类号: R72

摘要

Due to the incurable characteristics of osteogenesis imperfecta,health management plays a crucial role for children in healthy growth,independent life and integrating into society.This paper summarizes three dimensions of "biology-psychology-society",which summarize the research progress for health management in children with osteogenesis imperfecta.In the dimension of biology,the management on diet and complications about children is relatively definite,but more experiments are still needed in order to find out the appropriate values for the using doses of bisphosphonate and treatment time.Additionally,there is a lack of tools to assess the painful degree in children and sports management methods with different types of children with osteogenesis imperfecta nowadays.In the dimension of psychology,it is found that children with osteogenesis imperfecta,their families and carers are all expected to maintain a good state of mind.In the social dimension,we have known the need of children and their families,but their supporting systems are still expected to be improved through practice.